Happy

On June 30th Bobby and I left work early and went to City Hall in San Francisco... where we got married. We are still planning a wedding, but there are some things that need to happen first... like me getting a permanent job and us buying a house. Obviously, lots of transition right now.

Mostly I feel lucky lucky lucky every day. I have my health, I have my family, I have my friends, and I have a wonderful, wonderful husband. I also have a master's degree which is cool even if it doesn't make into the top 4...

I've decided it doesn't really make sense to keep up with this blog. In the next few weeks I might scale things back and just keep my cancer treatment entries up so that other survivors and their family/friends can still access my experiences with this particular disease and treatment regimen.

In this next stage of life when I'm applying to jobs and people can easily Google me, I'll probably want to blog hilarious, irreverent social commentary anonymously. Hope to see you around the blogosphere!

Life so far

I have now been in Berkeley for almost an entire continuous week. It feels like 10 weeks.

Classes: are good! I don't have any previous experience in any of the areas we're studying (politics, econ, stats, law) but I feel (perhaps prematurely) that I can totally do this. So far it's even been enjoyable learning. And not working? Well that's just icing on the cake.

Home: is coming together. Here is my new room!

After 3 trips to IKEA, I finally have enough receptacle space for all my shit. Friday night I went into the Depths of Hell for hopefully the last time. I bought a desk, came home, assembled said desk, and then hung up all my paintings. Next I'm going to get to work on our common space. We need art on the walls, a toaster, a table, and... some character. Also if I get a particular cord we can hook up the TV to the DVD player and actually watch movies.

Social life: I'm so freakin tired. On Saturday night I braved a party with my classmates and was very happy that I did. Making conversation between classes has been difficult for me, but put in me in a situation when I have a beer in my hand and can swear a lot? Perfect. Much like classes, I'm getting the feeling that I can do this. I can make new friends. I can build another community. Other than that, I'm just trying to keep yoga-ing (I keep having dreams where I can finally get my foot behind my head... so close!), do all of my homework, and of course spend inordinate amounts of time on Facebook. Breaking out beyond these activities requires my super powers, but hopefully as things settle down I will be able to return phone calls. But yeah, I miss all of you.

Cancer: things are ok. I have a new oncologist down here and my first appointment was fairly disappointing. I think it was a combination of 3 things:
1) No one will ever be Dr. K and the Swedish staff. They were totally amazing, we went through a lot together and they saw me all the way through--no new doctor coming in at the 11th hour is going to be able to beat that.
2) He really isn't as cool or lovable as Dr. K. Even objectively. And he didn't seem to give a shit. I'm a maintenance patient. I have no problems. It's not thrilling to see me looking healthier and healthier every week because he wasn't there when I was really sick. And also, I think he might kind of an ass hole.
3) Whenever I see a new specialist, I have to re examine the ALL diagnosis, the treatment plan, and my own agency in it all. Dr K, for reasons I completely understand, left no gray area when it came to treatment or diagnosis. He was like "this is it, this is what we're doing" and it was kind of nice because as the patient you are actually the person saying, "yes, you may put this poison in my body and I authorize it" and technically you have the power to deny any part of your treatment. And so you have to trust that your doctor knows what's up because you have no idea. I hate it when other oncologists then look at my treatment and say "well I would have done this differently" because look, dude, I just spent a year in hell because I thought it was the only way through so please for the love of God do NOT undermine my shakey confidence in what I am doing. Anyway, my new onc was just like "oh I don't do it this way..."
However, one of the things he doesn't want to do is see me every week for a blood draw! So hopefully I can just move to going in every 4 weeks for my Vincristine.

So that's the short of it. It's going to be ok.

Too late for Swine Flu jokes?

Week from Hell, round 1=over. Week from Hell, round 2=nagging at the back of my mind and causing anxiety. It is now the weekend. I just awoke from a 5 hour, klonopin induced nap on a Saturday afternoon. I have no plans to leave my house until Monday morning. Even though it would dramatically improve my quality of life next week to work through this weekend, I simply cannot. It is time to rest.

This week was interesting because I knew how much I was hurting my body by working long, high stress days. I knew it was making this awful cold about 10 millions times worse. But there was no. Way. Out. I simply have so fucking much work it's impossible. And no. There are not people to delegate to because that would require taking a lot of time to explain complex systems. Stress makes me paranoid. I know it's bad--way bad. It fucks up your immune system, your digestive system, your emotional equilibrium, and I really believe it's damaging on a cellular level. I believe stress is like poison in my body. And it makes me feel grosser than the swine flu that is currently taken residence.

My health update is that despite the green goo coming out of my nose, eyes, and throat, Dr K pronounced me healthy enough to do my full cycle of chemo on Thursday night. He used his fancy doctor flashlight and said there was nothing bacterial going on in my throat and nose. Viruses--they will be the downfall of our species! I feel like absolute ass.

My personal life is taking a hard hit due to work being so crappy. I a) work all the time, b) am too tired to do a lot of stuff when I'm not working, c) rarely have the energy to reach out and talk to people who are on my social periphery and therefor look like an aloof jack ass, and d) am that annoying person who just bitches endlessly about how fucked and miserable her job is when you do finally get me in a social context. I suck. My social life sucks. My friends are still really cool.

There is a light at the end of the tunnel. Week from Hell, round 2 should conclude our Weeks from Hell for the month of June. This post is not about sympathy or people finding solutions to my problems. It's is about the reality of what's going on in my life. It's about my post-cancer answers to life post-cancer. It's about lessons learned and forgotten and a realignment of values. It's about trying to do it right, to have it all, and the bumps along the way. It's about blogging stoned on anti-anxiety drugs.

O e t t i n g e r, out.

Ground Control

Every four weeks I take this drug called Vincristine. I get it through an IV. In November, getting my IV started took 5 attempts and on number 6, we went for the big vein in my elbow pit—and you’re not supposed to take chemo in your joints just in case there’s a leak. Even the guy who used to work with drug addicts couldn’t find a line in. This month, the amazing Nurse Lo got it on try NUMBER ONE. She is the first person to hit on a line on the first try since I started chemo in February. She rocks. It was an awesome way to start chemo in 2009.

Vincristine’s listed side effects are: neuropathy, hypoatraemia, hair loss, and constipation. However, other than the neuropathy, the two side effects that I notice are a runny nose and sensitive skin. My nose has been dripping for the last 11 months. And if I don’t take my allergy meds every other day or so I am plagued by extreme itchiness. Cold, numb toes, itchy skin, and a runny nose are totally tolerable, but they are also REALLY annoying. Having experienced a lot of constipation and hair loss, already… well, it’s not that bad I guess.

I spent my ENTIRE day in bed. Really. I lay in bed and watched instant netflixed Heroes episodes. At 5:30 I decided that I needed to eat something, take a shower and walk around. This is me bonking out on life after an 8 day trip to Oregon. Living is exhausting.

When I was home over the break people kept asking how I was (duh) and I kept trying to explain it… I’m fine. I can do everything. And I am living my life. But I’m also living right here on the edge. It doesn’t take much to push me over the side. A bad night’s sleep, a work fuck up, a nasty fight, a 9 hour drive… I’m a wreck. I will cry if you look at me funny. I hate this. I’ve always been a very emotional person—I feel things in a big way. But I’ve spent most of my life trying to control those feelings so I didn’t like an emotional wreck. I am now an emotional wreck at least 10% of the time. I do not like it one bit.

I wish I could show you how damn cute my hair looks. Obviously, the Photobooth shots offer some idea, but it’s adorable. It has a little curl to it… and these cowlicks. It’s finally long enough to part! And I just look like a normal girl. It’s not even an ambiguous cancer look. While I have a feeling more awkward grow-out moments are coming, I will take DPEH’s comment that I look “totally, Seattle, urban, intellectual lesbian” as the compliment that he meant it.

Hi

I just finished my graduate school essays. My personal history statement about how cancer has changed the way I feel about my life was the most difficult to write. In the end, I ended up distilling the experience into the three biggest ideas: that I realized I harbor a positive attitude at the root of my personality, that I have new appreciation for what hope is, and that I am infinitely grateful for my investment in community.

I thought my grateful attitude was a new thing brought about by cancer, but I just found this great journal entry from November 22, 2007:

“There are so many more amazing things to come. The last few years have introduced almost exclusively wonderful things into my life and yet I still struggle with their impermanence. Living in abundance—a paradigm that I love and that is not finite seems more and more appropriate.

Things that are abundant:
Love—the love of my friends
The possibility that something good will happen

Who is to say that Nathan, my favorite jeans, my friends in PDX, my professional life, the production of good music… there is no end to crushes, creativity, and my own potential. I’m thankful for Wilco, my health, my friends, and my family. There is always more.”

Sometimes I look at shit like this and shake my head. Am I seriously that girl? I think that yes, I am. It’s ridiculous.

Anyway, I feel excellent right now. My application is complete, it’s 4pm and I’m still in my pajamas, Phil Collins is playing, we have a 90% chance at a great new roommate, my sister comes tomorrow, it’s Christmas time, I just found this fantastic journal that I forgot I started last November before I got sick…

If you’re wondering how I am, I’m good. I work all the time now. I’m tired all the time. I am getting fat because it’s Christmas and I am eating a ton of sugar and my digestive system is functioning properly and helping me absorb thousands of bad calories. I made 12 rum cakes the other day. I still can’t feel my toes. I can do a half moon in yoga without putting my hand on a block…

I will continue to update on occasion, but for all you cancer blog fans out there, the best of it is Feb-August 2008. Cancer is really short. We were talking about that the other month in my LLS group—that treatment feels like forever, but really, it’s a remarkably short span of time for most folks. It doesn’t mean I don’t grapple with cancer-related issues every day (like health insurance for grad school! Blah!) but I think it’s probably significantly less interesting.

She's got (no) game

mOh man. I just went on my first date post-chemo. It was a blind date so I went wig-ed thinking that would be easiest. I would wear my fake hair, not bring up cancer, and see what that kind of interaction was like.

I am a failure at subtlety.

So pretty much it was a good time. Scrabble, beer, get to know you conversation. I felt like this was someone I might want to go on a second date with. When we got to the end of the evening and talked about going out again, I kind of snapped. All of a sudden, the half beer, the heat in my cheeks, the itchiness of the wig... I couldn't do it. I couldn't bear the thought of doing it again. I was like "well, if we go out again, I need to tell you something..." and then I awkwardly told him about it and was like "I just feel fake with this wig on, blah blah blah" and then having gotten that out on the table, not being able to stand another minute with the damn hair on, I PULLED MY WIG OFF AT THE TABLE. Yes. That was really, really weird of me. I get it.

Anyway, poor guy. He proceeded to babble about medical conditions that afflicted him and his family. What a trainwreck. I somehow doubt this person will be calling me.

So this is my lesson learned: just show up without a wig. People can't tell. They just think I made the unfortunate choice to shave my head. I don't even have to talk about cancer.

The thing is, I didn't want to talk about cancer, I just wanted to not wear my wig for another second. I wanted to be liked for being bald.

In other news, tonight was my first meeting with Team and Training for the Leukemia and Lymphoma Society. I'm going to be the Whidbey Island Marathon team's Honored Teammate. After a few practices with them, I'll be able to determine whether or not running a half marathon at the end of March is feasible. If it is, I will need to raise $1000. But I realized that would be pretty easy. If 40 people each donate $25--that's $1000! Or there's other stuff, of course.

So this is a good way to give back to LLS.

And the team's coach couldn't tell that I was the honored teammate--and I was talking to her bald. So there you go.

Un Hick my Heart

Hickman Removal Party, now known as "Un-Hick My Heart: Giving Leukemia the Finger since 2008" is set for Nov 1, 2008 at 8pm at the Mansion. All are welcome.

Tomorrow I will see Dr K to determine when the Hick comes out and when we "get to" start oral methotrexate. I will also get a blood check. I have been feeling really light headed lately which is either a result of low RBCs or perhaps a side effect from going off Prozac. Ultimately, I decided that anti depressents were an unnecessary addition to my drug-arsenal which is now more like a... cache. Um, I only take glutamine at this point, but reserve rights to Ambien and Klonopin (mostly K for recreational purposes--like the vice presidential debates).

What else? I am having a lot of re-entry anxiety. The things I stay up late obsessing over are embarrassing and ridiculous and I'm debating whether or not I really need to share it with the interwebs. Either way, I'll wait for a day when I actually feel articulate.