Well, I can't think of a better way to start my last day of Decadron then with a 4:30 am post. I feel ok. Not too crazy right now. Not like last night when I came home at 8:30 to witness a double dinner party (after myself and the house cleaners had spent the afternoon meticulously cleaning the kitchen) and was like "If this isn't clean tomorrow morning I'm going to have a nervous break down." Then I took some Klonopin, ate some food, and chilled. I really love my roommates and they took my baby freak-out gracefully and just pacified me with portobellow mushrooms. Mmm. Roommate love.
Things. Things are ok. Today is my last cocktail of the stomach killer: pred, adrio, vincristine and while I'm grateful to hopefully go back to regular bowel movements and a peaceful esphogus, step 2 (we can talk about it now) is scary. My next drug is Clyclophosphomide. Its two main side effects are Lymphoma and Infertility. Talking about poop is one thing. Getting graphic with my friends and roommates about all the correctal, Maalox, stool softner, etc I'm on often leads to funny conversations. And even while it's painful, it's... OK. Pubic hair falling out? Funny!
Lymphoma and Infertility are significantly less funny. And they aren't immediate. And I can't control them with more OTC drugs or Zofran. And who the hell knows. And yeah I'm in a very low risk threshold. So enough about that.
Today is Bekah's PetScan. I don't talk a lot about my other cancer-buddies out of respect for their privacy, but today is important and Bekah is one of the most significant connections I've made since diagnosis. If you love cancer blogs (and who doesn't?) and brilliant, sassy, thoughtful, generous, and attractive young women with cancer (obviously, you do!) check out Bekah and send her whatever you send me. It seems to work--my generous community!
Last night (speaking of great young ladies with cancer) was my LLS group. It turns over a lot--cancer being such a transitory disease, but this was perhaps the most successful group I've been at. There were 4 of us--all currently undergoing treatment. All young women between 22-30 and able to talk to each other. It's always nice to go to LLS and talk about cancer with people who REALLY get it, but for some reason last night was just easier and more fun. I was really impressed with the other women and the insight their stories provided. And now being 8 months into treatment I'm starting to feel like a wise old cancer lady. Very positive.
Cancer and The Bus. I ride the bus to Pike Place Market to see my therapist on Tuesdays. In the polite world, most folks never stare at my Hickman and only take side glances at my short hair. This is not true on the bus. I am guaranteed every ride to engage in a conversation with a COMLETE stranger about my health status. I like it. It feels so honest. And I love to talk about myself. And so far everyone I've encountered has sent me away with genuine well wishes-- random acts of kindness. On Tuesday night the two random women standing next to me (who didn't know each other) were both survivors and for 10 minutes we just made awkward conversation about cancer. But I liked it. There are places other than Swedish where I'm not a freak. I'm not a freak on the bus.
4 years ago